Hope and Frustration Living with Cystic Fibrosis

The Robbie has been donating proceeds to Cystic Fibrosis Canada since 1967 for treatment, research and education. CF leads to the destruction of the lungs and an early death for most people who have it. There is no cure. Once lung function is lost, there is no way to get it back. Three gene-modifying drugs are available – each costing about $250,000 per year in Canada – that are believed to slow down lung damage caused by the disease. Other treatments only ease symptoms. Access to all three medications is severely limited. Read the link here about two young brothers, both living with cystic fibrosis, who could face two very different futures because only one has access to cutting-edge medication.

https://www.cbc.ca/news/health/boy-with-cystic-fibrosis-denied-lifesaving-drug-1.5117469